Living with HHT: Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia (A Johns Hopkins Press Health Book)

Haven’t had a chance to read the book fully but what I have read is EXCELLENT.

Excellent information for someone suffering with this disease

Very informative.

This book is a comprehensive overview of everything you and your medical provider should know about Hereditary Hemorrhagic Telangiectasia (a mouthful); also known as Osler Weber Rendu Syndrome-a genetic blood vessel disease affecting over 1.5 MM globally. This disease is under-diagnosed and estimated 80% are not yet diagnosed which can lead to catastrophic consequences. A MUST have so the length to symptoms of nosebleeds in the family and diagnosis can be reduced from the current 27 years!!! So well written with top notch medical expert interviews.

All you need to know about HHT and more ....Great information, great book a must have. 👍

It's been a long time coming that there is a book that covers this condition... so I am glad that its there and I can point out what it means to people who don't have the condition. Wish it had existed when I was a kid... but glad that it's there now so that future generations don't have to live without being able to explain what it is and how it can be dealt with.

Great starting point for anyone with HHT, I have to say I did already know just about all the information in this book. So glad though that someone has finally written a book on this awful condition.